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From: Hachiroku ハチロク on 7 Dec 2009 21:57
On Mon, 07 Dec 2009 16:55:08 -0600, dbu'' wrote:

> In article <hfj9bc$j6t$3(a)news.eternal-september.org>,
> Hachiroku <Trueno(a)e86.GTS> wrote:
>
>> On Mon, 07 Dec 2009 05:38:32 -0600, dbu'' wrote:
>>
>> > In article <pan.2009.12.07.05.20.00.96525(a)e86.GTS>,
>> > Hachiroku ÉnÉ`ÉçÉN <Trueno(a)e86.GTS> wrote:
>> >
>> >> Actually, everything came up clean...sort of.
>> >>
>> >> There was one polyp, normal, no cancer
>> >>
>> >> However, there was one bit of information I was given, and leads me
>> >> to a bit of an understanding.
>> >>
>> >> Ever heard of Crohn's Disease? I hadn't either. And I'm beginning to
>> >> wish I never had.
>> >>
>> >> Now, we won't go too deeply into baffrom habits, but there are times
>> >> when I just about make it to the throne on time. I guess this is one
>> >> of the symptoms of Crohn's. Great. Just great.
>> >>
>> >> Crohn's is an inflammation where the small and large intestines meet.
>> >> The Doctor asked me if I ever had pains that might be misconstrued as
>> >> appendicitis. Um, yeah, occasionally, but it's not bad so I ignore
>> >> it. Another symptom.
>> >>
>> >> He also asked me if I ever experienced any other kind of pain in the
>> >> are. No, not really. Once in a great while.
>> >>
>> >> I saw the Doctor the other day and said I am almost sorry I had it
>> >> done. I don't know why but in the last week/10 days I have had what
>> >> feels like a slightly hot poker sticking into my abdomen. Noticable
>> >> almost all the time now, and at some times a wincing pain; nothing
>> >> drastic, but I notice it now.
>> >>
>> >> The female singer in the bacnd has a brother that has it, and said
>> >> there are some dietary solutions that can help. She's going to look
>> >> them up.
>> >>
>> >> Anybody else here have it, how bad, what can I look forward too, and
>> >> how are you 'treating' it?
>> >
>> > Not I.
>> >
>> > What are the recommendations from your doctor?
>>
>> So far, a prescription.
>
> If it works that's far better than surgery. When's your next followup?


'bout a month...


From: Hachiroku ハチロク on 7 Dec 2009 22:13
On Mon, 07 Dec 2009 17:12:37 -0600, Jimbo wrote:

> Hatchi,
>
> Another good site to hit would be CCFA.org from the Google site, at
> http://www.ccfa.org/info/about/crohns. Much good information in there.

Damn. That was an interesting read. Seems, "We don't know what causes it,
and we don't know what 'cures' it" (since there doesn't appear to be a
cure...).

Hmmmm.....

BTW, thanks for the input. To be honest, the way the doctors were talking,
it didn't appear to be that big a deal!

The dr that did the colonoscopy said it was minimal, and he's not even
really sure if it's Crohn's because of the way it looked.

But I have had some of the symptoms, and there was one more the nurse
asked about when I went for the reults of the test, and that is, she asked
me if I had any pain in my eyes! Why, yes! It kind of feels like when
you're first getting a toothache...

Interesting.



From: Hachiroku ハチロク on 7 Dec 2009 22:19
On Mon, 07 Dec 2009 12:15:08 -0600, FatterDumber& Happier Moe wrote:

> Hachiroku wrote:
>> On Mon, 07 Dec 2009 04:10:14 -0600, FatterDumber& Happier Moe wrote:
>>
>>> I don't have it but my neighbor does, he gets along pretty well, he
>>> has bouts of Throne King sometimes but all in all it doesn't affect him
>>> to badly, he isn't able to drive because of other problems and rides a
>>> bike a lot, and he goes miles on that thing. I did know one guy that
>>> had it pretty bad, he had to have several surgeries and died in his
>>> early 40's. From the way it sounds you aren't anywhere near that bad.
>>> You'd know if it was really something to worry about. Diet is about
>>> the only thing you can do for it from what I've read. And quit
>>> smoking.....
>>
>> Hmmm...it has become more pronounced since I quit using tobacco! Now, is
>> it the lack of stuff in tobacco making it worse, or is it using my
>> 'vaporizer' making it worse?
>>
>> As far as becoming more Liberal; well then I'd be really worried about
>> Climate Change, the air, water, birds, salamanders, Somalia, polar
>> bears, endangered Pandas...and probably have ulcers to boot...
>>
>> And Fram filters? I think they're the cause...
>>
>>
> The lord works in mysterious ways,
> This came through a bit ago, I don't think it will work but it's
> kind of interesting and who knows it might work, and the timing, you gotta
> wonder, and it might just work depending on the kind of smoke?
> http://jsmineset.com/
> Did you check out the forums?

Are you referring to the "tobacco smoke enema"?

I had actually heard about those before...

As for the forums, you know what they say, "Be careful what you wish
for...". I had been wishing for more work...

Yeah...got home at 8:50...



From: Jimbo on 8 Dec 2009 00:12

"Hachiroku ハチロク" <Trueno(a)e86.GTS> wrote in message
news:pan.2009.12.08.02.54.04.614618(a)e86.GTS...
| On Mon, 07 Dec 2009 17:48:04 -0800, in2dadark wrote:
|
| >>
| >> Anybody else here have it, how bad, what can I look forward too, and
how
| >> are you 'treating' it?
| >
| > My cousin has it. And he came close to having to wear a colostomy
bag. He
| > still drinks beer and smokes in spite of crohns.
| >
| > My advice (and this would be the same even if you didn't mention
crohns..)
| > is get the book 'live right 4 your type' - By Peter D'adamo. This a
great
| > book for EVERYONE. I've lived by it for the last decade and it
changed my
| > life. I always was marginally good with finances, spending when I
made
| > good and spending when I made little. Now, thanks to a diet that is
more
| > suited to me , I am more clear headed and make better decisions. I'd
never
| > have my escape place in Pa if it weren't for Dr. D and his research
in
| > diet.
| >
| > And, many Asian cultures have been using blood type for eons. They
use it
| > in hiring and setting up love connections. Don't fret. If you can
follow
| > the advice in this book Crohns will not be a factor in your life. Let
the
| > band play on..
| >
| > PS: My cousin doesn't take advice from anyone, new age or otherwise.
So,
| > he suffers..
|
| I'll have a look into this, I was reparing a computer for a girl
studying
| to get her registration (RN, that is) and when I mentioned Crohn's she
| said, WOW! Why? She said that can be pretty debilitating...
|
| Wow, indeed. I'll borrow Scott's gun, with ONE round before I have a
| colostomy bag...!!!
|

Wrong approach Hatch (last paragraph).

Most of the people I have met and/or spoken to about their
colostomies/ileostomies have been most happy 1) to be alive, 2) to be
living pain free for the first time in like 15 or 20 years (except for
the wee ones), 3) to be LIVING . . . It can be a life saver and a life
giver. If your diagnosis is confirmed, contact those folks from CCFA.com
and find out where you can find a Crohn's/Ulcerative Colitis support
group up in your neck of the woods, and speak with some if those people
who have colostomy/ileostomy pouches as a companion, and see how many
would/will trade places with the way that they were. How do I know so
much about this? I was diagnosed with cancer or the bladder in Aug '87,
went the route with 2 months of chemo, endured 39 radiation therapy
sessions that left me with a lasting legacy, and ended up with a radical
cystectomy along with other organs or pieces of me, and have worn a
urostomy device for 21+ years (since Sep '88). Know what? It is as
natural this way now as it was the other. Not a damned thing to be
ashamed. Evreyone I have known since who came down with bladder cancer
and who hasn't had it handled this way is dead and can't speak with me
anymore. And through assiciations made locally as well as nationally
through support groups, have met many colostomates/ileostomates. I've
belonged to support groups ever since and am now a moderator in a
urostomy health group with Yahoo with a small membership from the USofA,
UK, and Canada. The wearing of an appliance is the absolute last thing
to be concerned about. Actually there is a fairly eye opening list of
celebrities past and present, who wore or are wearing those 'bags' and
few people know about it. I'll see if I can dig it back up and send it;
you know, people like Dwight David Eisenhower was an ostomate. You would
be surprised at the Who's Who of 'bag' wearers.

Prednisone long term usually screws up people, but does so in differing
ways. Most everybody I have met can almost be picked out with certintude
because they were blown up like blimps. It does add weight. And many
folks end up with nasty arthritis problems. The nasty side effects
listed in this thread haven't been problems with those I've met, but they
are also side effects of numerous other types of medications. That's
something that must be worked out between the patient and the doctor, but
as a patient, you would be well advised to maintain the control over your
treatment. Just learn what you need. Crohn's is a life changing
condition for most people. If I can, I'll get a guy here in the
Pensacola area who has lived with a colostomy for probably 25, 26 years
(or even more since he has had it since he returned from Vietnam, but I
can't recall when that was) and he has absolutely no problems with it,
include no requirements for special diet. It is manageable. And you can
always hope that the doc is wrong.

--



PcolaPhil


"America is not at War. The U.S. Military is at War! America
is at the Mall."



|
|

From: Hachiroku ハチロク on 8 Dec 2009 00:17
On Mon, 07 Dec 2009 23:58:25 -0500, Scott in Florida wrote:

>>I'll have a look into this, I was reparing a computer for a girl studying
>>to get her registration (RN, that is) and when I mentioned Crohn's she
>>said, WOW! Why? She said that can be pretty debilitating...
>>
>>Wow, indeed. I'll borrow Scott's gun, with ONE round before I have a
>>colostomy bag...!!!
>>
>>
>>
> Look into the diet thing, before using my gun.
>
> We need you around to keep these libs at bay....

We had a guy I was working with (in his 70's) that was driving deliveries
for the CarQuest store. They got rid of our old beaters and got us a fleet
of brand new Rangers...nice trucks. The guy with the bag got into a pretty
bad accident with his...I won't go into details what happened with the
bag, but I'm glad I didn't have to clean that truck!



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